26 February 2009

Blood work, and snow in February

In Washington, in this area. Weird for me....don't know why. Maybe its cause this Sunday it was like....50-ish when my sis and I were drawing in the driveway, and now its snowing.

Anyways. Yeah.

I also met with Dr. H today. I'm changing my medication to the patch.

This one silly.

Hopefully this will help even things out again, and I can't throw this up :^)

The blood work is for my dermatologist, apparently I don't have recent enough labs for the things she needs.

And, I'm still having the seizures, every hour-ish.

So that's where I am.



24 February 2009

Still having them

The seizures. About 1-2 hours apart.

I had the EEG, we don't know if I had a seizure during the test though. I had one directly before as the tech was attaching the electrodes, and I had one shortly after, so we're hoping I did although I probably didn't.

I feel gross....and tired.


Going to bed.



Going to have an EEG at 2

I'm still having seizures, but they're about 2 hours apart.




23 February 2009

Something is wrong

I just got back from the ER.
I've been having Petite Mal seizures since 3:30
Possibly, I've been having them all week.
It could explain the headache I've also been having all week.
The ER doctor said that there was no danger, so I was released.
I'm going to have an EEG within the next 24 hours.
And I had a nail removed today.
My finger didn't accept the anesthetic.

My life sucks.
Just saying.

The Vicoden is kicking in, I'm going to sleep

21 February 2009

Chalk is funn!

See See See?

I did chalk drawings with Tori today.

It was enjoyable.


So I've decided

That my nails should all just come off and never grow back.

K thanks bye


20 February 2009


Didn't make it. I hate my head.

Now I'm going to cuddle the Excedrin bottle and open some windows.



19 February 2009

Dermatology: Act 1

So. I met with my new dermatologist today. The plan goes as follows.
In March I'll go in. They'll take a biopsy from a nail bed, which ever happens to be the least healed.
Then, they'll send it off to pathology, see what they can.
If nothing definitive comes up, I'm getting referred to a 'Nail' Professor at UW, I guess the man specializes almost exclusively in nail disorders.

So, that's the plan. My pinky nail, this time on the right hand, is starting to come off. Just a little tug is all it takes. =(

I'll have to have this one removed toooooo.

No fun.

Blah. Major headache. I'm going to bed. And hopefully, I'll make it to school, and STAY THERE, at least one day this week.


17 February 2009

Mr.C sets himself up

Today at school sucked. But I did have a funny moment this morning.

The sub nurse and the assistant were late, so me and about 5-6 other kids were standing/sitting around the Health Room door.

Mr. C saw us all, and after the third time of him walking by and seeing us all sitting there, he came over.

"Okay ladies and gentlemen, everyone needs to stand up. Come on, everyone stand. That's it."

I poke my head out from behind the girl on crutches.

"Uhh, Mr. C? I think I'm gonna, you know, just stay sitting. That okay?"

(I of course was in my wheelchair.)

So, then the entire entrance burst out in laughter, Mr. C included, and he also acknowledged that he had set himself up for that one.


Good time good time.


16 February 2009

ER, take 293042

Just got back from MB, after a blackout. Bleh.

Happy 2nd G!

Ah....good day yesterday!

We went to the pet store and got Ty a parakeet...it seems to be helping with the loneliness. Although I was just in the kitchen for a few and as soon as I walked out of the room he began hi incessant chirping....

We had some friends over, which was cool.

Then I went to church! It was so good to be back there. I'm so much more comfortable with mass now.

And the sermon was nice....Father W was talking about how fundamental the need for human contact is, in conjuncture with the story of the leper who had the courage to approach Jesus and ask to be healed. Jesus, out of pity, reached out and healed him. This enabled the leper to receive human contact again. Father W said that in a way, we are all the leper in the story. We're all holding something inside or have something outside that creates a barrier between us and others. He then asked us to be like Jesus in the story. To reach out to those who are different, and to not be afraid of the consequence.

But the part about touch...it was interesting to me. It ties in with my attacks. You see, during my attacks, its like I'm paralyzed, but still fully awake. It doesn't matter how hard I try, I can't respond before my body is ready. And so EMS responders (firefighters, EMT, Paramedics, ER personnel) treat me as unconscious because of my lack of response. But I'm still awake, and can hear and feel everything that is being done. Very rarely does anyone take the time to talk TO me instead of over me. Same with touch. Unless its to attach something to me or check something, very rarely does anyone touch to comfort me. I can FEEL it though. And that helps SO much, just a simple gesture of reassurance. It makes me less scared, stressed, angry. And it helps. So why is it that one of the most fundamental human needs can't be fulfilled in emergency response? Why can't EMS be taught simple, cheap, yet very effective ways of comforting patients? A hand on the shoulder, a quick touch on the forehead, it doesn't have to be anything special. And, ALWAYS talk to the unconscious patient! You have no idea how much they can hear.


In other news,
G turns 2 on Tuesday, so we had a birthday dinner in celebration at Hungry Hungry Hippos yesterday. I became the babysitter of sorts. It was TOTALLY WICKED! lol jkjk

I fed him and kept him entertained so his momma could enjoy her meal and talk, and get a little break. I loved it, she loved it, G certainly loved it. He's such a flirt lol.

So. That was yesterday.
Ty is now sitting on my shoulder preening. He's like the clingy boyfriend I never had lol.


13 February 2009

Sad today

Liv, my female cockatiel, passed away today. It seems she became egg-bound. There really wasn't anything for us to do...
She was fine this morning when I cleaned their cage....a few hours later she was sitting on the bottom of the cage, very lethargic and she just LOOKED ill. We moved her to a separate cage, with a heating pad, some wet clothes to keep it slightly humid in hopes that it would help her pass the egg. It didn't....and she passed at 5:04 PM

We didn't even have time to get her to a vet...by the time we realized how bad she was, the cold would have hurt her too much.

Now I just need to focus on Ty, my male. He's been calling for her since we took her out of the cage. I hope he gets over it fairly quickly. It hurts to see him sad.

Well, I may or may not touch base later this weekend.


11 February 2009

Walks are funn!

So, I didn't get to meet with Dr. H today....
Grrrrr....and the re-schedule is for 2 weeks from now.

BUT, I did get to see Kris. Without the chair. Then Mom and Tori and I went for a (planned, uneventful) walk on the BPA trails. It was very exciting.

And, my chair is fixed thanks to a wonderful man named Chris.

And, I'm doing well in school.

And, I got to have breakfast with Momma today.

And, I got to talk to Wade today.

And, I got to see Ms. E yesterday.

And, I feel goodish, although may be taking a happy pill tonight. We'll see.

So, Bye


10 February 2009

Happy pills

Are wonderful wonderful inventions.

Dr. S gave me Vicoden. I only took one....but man. I didn't care about ANYTHING.
He gave it to me because yesterday was fail.

So one of my nails (pinkie on the left hand) came unattached from the bed but not the matrix (where the nail comes out of the finger.) Because it didn't come all the way off and nails will not reattach to the nail bed, I had to have it removed. No biggie....except that after a double digital block AND a distal block, and my finger looking majorly deformed from the amount of Lidocane, it still wasn't numb. Dr. S thinks it was because the finger was swollen and so the meds couldn't get there...but still. PAIN.

So....rough day yesterday and today. I did get to school for 3 periods, and I got my chair fixed!! New seat and back, new caps, new seat belt at a better location, all the nuts and bolts tightened!!

So. Tomorrow I have 2 appointments...hopefully the snow doesn't cancel them. If it does I'll be very angry!


05 February 2009

Good music

I was reintroduced to Anberlin today thanks to Ashy's Mp3 player.
I especially enjoy the song "Paperthin
Hymn". One verse is as follows.

"August evenings
Bring solemn warnings
To remember to kiss the ones you love goodnight

You never know what temporal days may bring
So laugh, love, live free and sing
When life is in discord
Praise ye the lord"

Taylor Swift's songs "The Best Days" and "Change" are both awesome, actually I love both of her CD's
, but anyhoo. These are the lyrics.

Taylor Swift, "Change"

"And it's a sad picture;
The final blow hits you
Somebody else gets what you wanted again,
You know it's all the same,
Another time and place,
Repeating history and you're getting sick of it

But I believe in whatever you do,
And I'll do anything to see it through...

Because these things will change,
Can you feel it now?
These walls that they put up to hold us back will fall down,
It's a revolution,
The time will come for us to finally win,
And we'll sing
We'll sing

So we've been outnumbered,
Threatened and now cornered,
It's hard to fight when the fight ain't fair,
We're getting stronger now,
find things they never found,
They might be bigger,
but we're faster and never scared.

You can walk away say "We don't need this"
But there's something in your eyes
says "We can beat this"

'Cause these things will change,
Can you feel it now?
These walls that they put up to hold us back will fall down,
It's a revolution,
The time will come for us to finally win,
And we'll sing
We'll sing

Tonight we'll stand,
Get off our knees,
Fight for what we've worked for all these years,
and the battle was long,
It's the fight of our lives,
When we stand up,
Champions tonight

It was the night things changed,
Can you see it now?
These walls that they put up to hold us back...fell down,
It's a revolution,
Throw your hands up, 'cause we never gave in,
And we'll sing
We sang

And some from "The Best Days"

"I don't know why all the trees change in the fall
I know you're not scared of anything at all
Don't know if Snow Whites house is near or far away
But I know I had the best day with you today

I have an excellent father
His strength is making me stronger.....
I grew up in a pretty house
And I had space to run
And I had the best days with you

Now I know why all the trees change in the fall
I know you were on my side even when I was wrong
And I love you for giving me your eyes
Staying back and watching me shine
And I didn't know if you knew so I'm taking this chance to say
That I had the best day with you today"

=) Good music can change my day!



03 February 2009

Funnies from class today.

"Why were you late?"
Said distractedly "Oh cause I made up a very creative swear word and Coach wasn't impressed. Had to do push-ups"

The teacher talking about love...

"Well, my mother told me when I was young that it's just as easy to love a rich girl as it is a poor one so...might as well love the rich on right?"
"Oh yeah? How did that work out?" (said by random boy)
"Well, I'm a teacher at a public high school so...."

Anyways. Yeah. School is going. No health issues. I did have an attack on Sunday.

Ash and I were walking to the park from the sidewalk in front of the fire station. I had just finished asking one of the fire fighters about the rabbits we'd seen hopping around. One of the other fire fighters popped out of the side door to say "hi" as we were walking and scared me and I went down. No big deal, it was only like, 3 min and Mom and Ash got me into the truck. I don't even think the guy was still out when I fell, so.